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Empowering Lives Through Health Literacy: My Story Living with Lupus & The Charlie E & Minnie P Hendrix Foundation

Writer's picture: Susan L. HendrixSusan L. Hendrix

Friends Using Digital Equipment
Friends Using Digital Equipment

Living with Systemic Lupus Erythematosus (SLE) is a journey filled with challenges—physically, emotionally, and mentally. As someone who has navigated this path firsthand, I, Susan Hendrix, founded the Charlie E & Minnie P Hendrix Foundation for Chronic Illness to bridge the gaps in healthcare access and education for those battling chronic conditions, especially in underserved communities.

One of the most critical issues in healthcare today is digital health literacy—the ability to find, understand, and use online health information to make informed medical decisions. Many lupus patients struggle with this, often encountering misinformation, unreliable sources, and difficulty accessing telehealth services. That’s why our foundation is stepping up to help!

Introducing Our Digital Health Literacy Workshop

📢 Starting March 15, 2025, the Charlie E & Minnie P Hendrix Foundation will launch a Digital Health Literacy Workshop, designed to empower individuals with lupus and other chronic illnesses to take charge of their health online.

Why This Workshop is Important for Lupus Warriors

Lupus is unpredictable, and accessing reliable health information is crucial. Whether you need to understand lab results, find trustworthy research, or use telehealth for specialist visits, digital health literacy can make a difference in your care journey.

What You’ll Learn in the Workshop:

✅ How to find credible health information online✅ Navigating patient portals to access test results & doctor notes✅ Using telehealth services for virtual medical appointments✅ Protecting your personal health data from scams & misinformation✅ Understanding your rights as a patient when accessing digital healthcare

How to Join the Workshop

This workshop is free and accessible to all. We know life with lupus can be unpredictable, so we’re offering a flexible, learn-at-your-own-pace format. Participants will receive a YouTube link to watch the sessions at their convenience, making it easier to fit into your schedule.

Register Now!

🔹 Visit our website https://cemphfoundation.com Go to the Contact page🔹 Fill out the form with your name & email🔹 Click Submit to receive workshop details & the YouTube access link

📩 Have questions? Email us at info@cemphfoundation.com

As someone who has lived with lupus, I know the importance of knowledge and empowerment in managing this condition. Join us in this mission to make healthcare more accessible and understandable for all.

💜 Together, we can fight lupus with knowledge and advocacy!

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